tag:blogger.com,1999:blog-2322608026032113950.post8183109103002283751..comments2023-03-26T08:20:15.150-07:00Comments on Iron Overload: M.E. Fibromyalgia and Hemochromatosis?Anonymoushttp://www.blogger.com/profile/17743645912005262009noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2322608026032113950.post-19788797179196318922019-01-28T06:00:33.618-08:002019-01-28T06:00:33.618-08:00I've been diagnosed with fibro and CFS and I&#...I've been diagnosed with fibro and CFS and I'm currently waiting to get my hemochromatosis test results back--hemochromatosis runs in my mom's family. <br />(As an American) I think the NHS are probably trying to say that even though hemochromatosis is relatively common, it's not quite common enough to be ROUTINELY screened for, like breast cancer. It can also be hard to confirm (from what I understand), so the screening is more difficult than most routine screening. So I get why they don't do it as routine screening--but I also think that it should get more publicity than it does, since most patients/doctors (at least here in the US) don't think to get people checked for it when they're showing symptoms! Especially in the UK, since the UK LITERALLY LEADS THE WORLD in genetic hemochromatosis cases!!! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1050911/?page=2Anonymoushttps://www.blogger.com/profile/07415088073774275643noreply@blogger.comtag:blogger.com,1999:blog-2322608026032113950.post-9182441029379999202019-01-28T05:53:45.427-08:002019-01-28T05:53:45.427-08:00(Pretty sure she was being sarcastic and indicatin...(Pretty sure she was being sarcastic and indicating that just because hemochromatosis is most common in certain populations doesn't mean it's okay that it's not being commonly screened for. She's defending you. :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2322608026032113950.post-58368023170396157842018-01-05T09:18:23.933-08:002018-01-05T09:18:23.933-08:00I suffer from M.E. and have recently been diagnose...I suffer from M.E. and have recently been diagnosed with Hemochromatosis. I started to have venesection but this has caused me to have a bad M.E. relapse. I think this is because M.E. is an illness that affects the CNS. I have had to stop treatment.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2322608026032113950.post-7310879495326417602013-07-23T11:12:55.017-07:002013-07-23T11:12:55.017-07:00Im Irish & I have Haemochromatosis & if I&...Im Irish & I have Haemochromatosis & if I'm honest I'm offended by your comment!!Anonymousnoreply@blogger.com